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maintenence for disabled adults

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13 Sep 12 #355676 by soulruler
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My sons mental age is assessed between 6 and 8.

I will have a look at the link you have posted up, many thanks for that.

Feeling more than a little depressed today (massive understatement).

Anyway, on the bright side, the great thing about my son is that he is not materialistic. If he goes down the shop to get something with one pound and comes back with more than a coin in change he thinks he is richer and better off than when he went off.:)

People born with DS are much misunderstood. Actually when he was first born people trying to console me by telling me "they" are very loving was of no comfort at all; all I could see from my prejudiced and pretty privileged point of view was the Sunshine bus and me being a carer for a imbalcile for the rest of my days.

Well, I suppose to a certain extent that is true but not because he lacks a great deal of brightness, just because he sees life in a totally different way and point than those blessed with high IQ''s (not really sure that a large IQ is a blessing actually).

He has some of the greatest says, the one of the moment is Love is Love, Life is Life, Law is Law, War is War and Death is Death.

Drives my Mum mad but not only is it the truth but the happy way he says it is very funny.

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13 Sep 12 #355679 by soulruler
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Well that was very interesting and much easier to read than the first link, so thanks for that.

Do you think that the first port of call for me might be social services as son did have a disabled social worker involved at the point some pretty malicous allegations were made to social services about my lack of care as a parent?

Or do you think there is a different approach, would appreciate your thoughts as I am not really seeing straight today.:(

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13 Sep 12 #355686 by soulruler
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I know it is slightly off subject but just trying to cheer myself up.

A long time ago i remember watching a documentary about ancient and primative civilisations.

One of the people under discussion were a small group of tribal people who lived on a small island somewhere nice and tropical.

They maintained their society and much of their food was gained from fishing.

When westerners discovered them they attempted to teach them a "more educated" way of life. As far as the indigionous people were concerned fish was a commodity and number was irrelevent. Fish were fish and if you had enough fish that was all that you needed to have.

no matter how hard the westerners tried to teach the people how to count the people just couldn''t see the point, they just could not see the relevence or point of learning quantity, in the end the westerners gave up.

The people went out and some of them fished, when they came home after having caught enough they just shared the fish out.

It reminds me of my son as try as you might and he is being taught all the time it is difficult to get my son to learn any number reliably over ten. It is very endearing from that point of view when you realise that more than is a pointless exercise.

I sort of wish a long time ago that I had not attempted to protect not just me and my ex but also my mum from just enough, sometimes you can be too busy worrying about going bankrupt and being homeless and in my case my worries right now from the past appear to be catching me and all my family up.

On a more positive note perhaps I should get back in contact with connexions - I have been involved and under their supervision in the past.....

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13 Sep 12 #355689 by dukey
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I`m told you can`t get attendance allowance until your 65, Why i have to post i have no idea :blink:

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13 Sep 12 #355691 by soulruler
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Because you can Dukey:)

Attendence allowance might be the wrong terminology but I did used to get an allowance for a while when my son was young - maybe it was carers allowance?

Anyway, I will contact someone somewhere and find out what I might be eligable for and see if it helps.

Problem always being that you need to make sure that you use the benefit given for the purpos it is supposed to be for, DLA as most people know is for the additional needs of the disabled person not for general living expenses such as food which everyone has.

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13 Sep 12 #355695 by dukey
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soulruler

My better half had two disabled adults sadly one Maria died a couple of years ago, she has books on the subject, her user name is LindaE, it would be worth time time talking to her, i know nothing of the subject, i just do what i`m told, can anyone else hear the crack of the whip?.

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13 Sep 12 #355700 by soulruler
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Thanks Dukey will pm LindaE

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